Rare Disease Day 2014

UnknownFebruary 28 marks Rare Disease Day 2014. This day sheds light on diseases that are considered rare and uncommon. According the official Rare Disease Day Website, “The main objective of Rare Disease Day is to raise awareness amongst the general public and decision makers about rare disease and their impact on patients lives.” The slogan of this years event is “Join together for better care.”

In the U.S. a disease is considered rare when it affects fewer than 200,000 Americans at any given time. There are over 6,000 known rare diseases that affect over 250 million people worldwide. Most of the 6,000 known rare diseases are genetic and are generally chronic and seriously debilitating. This makes awareness of the day and advancement in patient care even more important to the millions who suffer. Many rare diseases are classified by the SSA as being apart of the list of 225 CAL conditions.

In all, Rare Disease Day is a way to raise awareness through fund raisers, press conferences, and various community events. This day also serves as a day of support, a simple reminder to the millions of individuals and family members who are affected by a rare disease that they are not alone.

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